Welcome - Moebius Syndrome Foundation
Founded in 1994, the Moebius Syndrome Foundation has been the center of the Moebius syndrome community for nearly 30 years. Our conferences allow individuals with Moebius syndrome and their families to meet each other, build friendships, and find support.
The incidence of Moebius syndrome is roughly 2 to 20 cases in every 1 million births. The condition occurs in all ethnicities. There is no gender bias: males and females are affected equally. The etiology of Moebius syndrome is poorly understood; the syndrome might be caused by genetic or environmental fac-tors, or both.
What Is Moebius Syndrome?
Moebius syndrome is a congenital (present at birth), non-progressive facial weakness with limited outward horizontal movement of one or both eyes. An additional criterion of having full vertical (up and down) eye movement, prior to any eye surgery, has also been suggested.
For Adults with Moebius Syndrome
Many people living with Moebius syndrome have experienced struggles physically and emotionally. Moebius syndrome forces individuals to cope with physical limitations and find ways to grow “thicker skin” as they face rejection, loss, and an ableist society.
Moebius syndrome is a non-progressive, rare neurological disorder that is present at birth and affects the cranial nerves that control facial expression and eye movement. It primarily affects
Who We Are - Moebius Syndrome Foundation
The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, to promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research that advances the diagnosis and treatment of Moebius syndrome and its associated conditions.
For Medical Professionals: Diagnosing Moebius Syndrome
Moebius syndrome is defined by 1) congenital, non-progressive facial weakness with 2) limited outward horizontal movement of one or both eyes. These two features must be present to have a diagnosis of Moebius syndrome. An additional criterion of having full vertical (up and down) eye movement, prior to any eye surgery, has also been suggested.
Moebius syndrome (MoS) is a rare condition characterized by the underdevelopment of the sixth and seventh cranial nerves uni- or bilaterally.1,2 Features include facial paralysis and inability to abduct the eyes.2 Most infants born with MoS grow to adulthood and participate in meaningful life
Facial Paralysis Information - Moebius Syndrome Foundation
Facial paralysis can come in many forms, from Bell’s palsy, stroke, trauma, disease, or congenital conditions like Moebius syndrome. The videos below give an overview of facial nerve structure and more information on facial paralysis.
Moebius syndrome is a nonprogressive craniofacial/neurological disorder that manifests itself primarily in facial paralysis. Individuals with Moebius syndrome cannot smile or frown, and do not have lateral eye movements. The causes of Moebius syndrome are unknown, although the condition probably results from a combination of environmental and ...