Fall River community rallying around toddler and family during difficult time
The family of a Fall River two-year-old is dealing with a lot this time of year, and the community has stepped in to ...
The New Zealand Herald22d
Auckland couple welcome son after baby daughter’s Kabuki Syndrome death
“She came to this world for a purpose.” That purpose was already in action with their involvement in creating a Kabuki Syndrome New Zealand Facebook group, and offering words of encouragement ...
WHDH24d
Fall River community rallying around young boy in need of organ transplant
Tayten St. Martin is living with Kabuki Syndrome, a genetic condition which requires lifelong medical treatment and can impact physical appearance as well as heart and kidney function. His mother ...
CBS 58 News2y
Mom of teen who died of COVID frustrated school district won't acknowledge how she died
Bella Pape died on Feb. 14, after a three-week battle with COVID-19. The 13-year-old was born with Kabuki syndrome, which caused severe health problems and made her more vulnerable to COVID.
turnto1024d
Fall River community rallying around toddler and family during difficult time
Before he was born, Tayten St Martin's mom, Courtney Levesque, learned her son had a rare genetic syndrome 'Kabuki Syndrome.' After several doctors appointments and monitoring, at 26 weeks ...